Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Real StoriesGoogle News — AlbinismA family speaks before World Albinism Awareness Day
Ahead of World Albinism Awareness Day on 13 June, one family is sharing their experience to help others understand what life with albinism looks like.
Education & InclusionOHCHR — Independent Expert on AlbinismUN report examines education rights for people with albinism
The UN Independent Expert on albinism has submitted a formal report on education access. It addresses the barriers children and adults with albinism face in schools worldwide.
Health & Sun ProtectionGoogle News — AlbinismWhat albinism skin actually needs, and why myths persist
NTV Kenya's The Glam examines the dermatological realities of albinism and the misconceptions that continue to surround skin and pigmentation.
Human RightsOHCHR — Independent Expert on AlbinismA new UN voice takes up the albinism mandate
Ms. Muluka Anne Miti-Drummond has issued her first statement as UN Independent Expert on Albinism, signalling the priorities she will bring to the role.
Health & Sun ProtectionGoogle News — AlbinismStandard lens implant offers cataract option for oculocutaneous albinism
A case study published in Medical Research Journal suggests standard intraocular lenses may work where specialised devices are unavailable. The finding carries practical weight for patients in low-resource settings.
Africa FocusUNHCR AfricaUNHCR identifies albinism as protection need in Tanzania camp
A 2015 UNHCR document from Nyarugusu refugee camp listed people with albinism among those requiring specific protection. The record surfaces an early formal acknowledgement of targeted risk.
Human RightsOHCHR — Independent Expert on AlbinismTen years of International Albinism Awareness Day
The UN marks a decade since the first International Albinism Awareness Day, observed each year on 13 June to spotlight the rights of people with albinism worldwide.
Human RightsOHCHR — Independent Expert on AlbinismUN expert reports on albinism conditions in Zambia
The OHCHR Independent Expert on Albinism has submitted a formal report on the situation facing people with albinism in Zambia to a UN treaty body.
Health & Sun ProtectionPubMed — Albinism ResearchGenes linked to albinism identified in Wels catfish
Researchers have identified candidate genes associated with albinism in Wels catfish, adding to the scientific understanding of pigmentation genetics across species.
Human RightsAllAfrica — AlbinismAIDS funding cuts expose gaps in African health law
Legal scholar Mnotho Ngcobo argues the US withdrawal of HIV funding has revealed deeper constitutional failures in how African states protect the right to health.
Human RightsAmerican Journal of Human GeneticsRare facial syndromes share genetic roots with normal variation
A study in the American Journal of Human Genetics found that rare genetic conditions affecting face shape act on the same biological axes as common variation in the general population.
Human RightsOHCHR — Independent Expert on AlbinismUN expert documents rights failures in Lesotho
The UN Independent Expert on Albinism visited Lesotho and found significant gaps in legal protection, healthcare access, and safety for people with albinism.
Human RightsUN General Assembly NewsHow the UN is using AI for human rights
From a child learning to read in Jamaica to faster TB screening in Ethiopia, the UN is documenting how artificial intelligence is being applied to human rights work.
Health & Sun ProtectionAllAfrica — AlbinismAfrican healthcare training overlooks family and community roles
Healthcare professionals across Africa often work in contexts shaped by collective care, but their training rarely reflects this. A new analysis calls for change.
Real StoriesReuters Health (Albinism via Google News)A pageant in Africa affirms dignity for people with albinism
An annual pageant is giving people with albinism a public platform to challenge stigma and assert their place in their communities. The event centres visibility over spectacle.
Africa FocusGoogle News — AlbinismLilongwe family buries man with albinism after killing
A man with albinism has been murdered in a village near Lilongwe, Malawi, deepening fears about the safety of people with albinism in the region.
Human RightsOHCHR — Independent Expert on AlbinismZambia's justice system fails people with albinism
A new OHCHR report maps the barriers blocking people with albinism in Zambia from accessing justice, and outlines what needs to change.
Africa FocusUNHCR AfricaUN resettles people with albinism fleeing Malawi threats
UNHCR has begun resettling refugees with albinism from Malawi after escalating threats to their safety. The moves follow years of documented attacks linked to ritual practices.
Africa FocusGoogle News — AlbinismTanzanian children lost limbs in attacks over albinism
ABC News reports on children in Tanzania who were attacked and lost limbs because of their albinism. The attacks are linked to demand for body parts in ritual practices.
Health & Sun ProtectionGoogle News — AlbinismWhole-genome sequencing maps genetic roots of albinism
A study in npj Genomic Medicine used whole-genome sequencing to identify diverse genetic causes behind albinism and infantile nystagmus, offering new detail on how these conditions present.