Archive
Real Stories
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Emma on travelling with albinism and low vision
In a new episode of Albinism Life, Emma speaks candidly about navigating travel with low vision — the practical challenges, the social ones, and the confidence built along the way.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Growing up with albinism in Nigeria and the UK
Teejay was born in Lagos and later moved to the UK to study. In a new podcast episode, he speaks about belonging, identity, and what it means to grow up with albinism across two very different countries.
Real StoriesGoogle News — AlbinismA mother focuses on what her son can do
A New Zealand mother raising a son with a rare form of albinism says she centres her hopes on possibility, not limitation.
Real StoriesAllAfrica — AlbinismZama Nkwanyana fills the gaps in KwaNyuswa
In a KwaZulu-Natal community where work keeps parents from clinic visits, 27-year-old Zama Nkwanyana steps in.
Real StoriesAllAfrica — AlbinismTooro prime minister defends withholding King Oyo's health details
Calvin Armstrong Rwomire said he chose not to inform senior kingdom officials that King Oyo had travelled abroad for medical treatment.
Real StoriesGoogle News — AlbinismA family speaks before World Albinism Awareness Day
Ahead of World Albinism Awareness Day on 13 June, one family is sharing their experience to help others understand what life with albinism looks like.
Real StoriesReuters Health (Albinism via Google News)A pageant in Africa affirms dignity for people with albinism
An annual pageant is giving people with albinism a public platform to challenge stigma and assert their place in their communities. The event centres visibility over spectacle.
Real StoriesOHCHR — Independent Expert on AlbinismDr Murray Brilliant on living with albinism and science
Geneticist Dr Murray Brilliant has spent decades studying pigmentation — and has albinism himself. The UN's Independent Expert profile offers a rare self-portrait.
Real StoriesOHCHR — Independent Expert on AlbinismA pharmacist in Chile lives with albinism on her terms
Mafalda Soto Valdés works as a pharmacist in Chile. Her account, published by the UN Independent Expert on Albinism, describes the daily adjustments her condition requires.
Real StoriesOHCHR — Independent Expert on AlbinismDavid Brodbeck shares his life with albinism
The UN Human Rights office profiles David Brodbeck, a person with albinism whose story is part of a broader effort to document real lives within the global community.
Real StoriesGoogle News — AlbinismOscar-shortlisted film centres a boy with albinism
Simon Panay's 'The Boy With White Skin' reached the Oscar shortlist by weaving albinism awareness into a story shaped by mysticism and lived experience.
Real StoriesGoogle News — AlbinismShaiboy on Afrobeats, albinism, and working twice as hard
Nigerian artist Shaiboy speaks about navigating the music industry with albinism, and what it takes to build a career on his own terms.
Real StoriesGoogle News — AlbinismAderopo Afolabi uses photography to reframe albinism
Nigerian photographer Aderopo Afolabi is using portraiture to challenge how albinism is seen and represented in West Africa.
Real StoriesGoogle News — AlbinismNigeria hosts its first pageant for people with albinism
A new pageant in Nigeria centres people with albinism in a national conversation about beauty and representation. The event is reported to be the first of its kind in the country.
Real StoriesGoogle News — AlbinismDaniella Boima Garrick wins first Miss Albinism Africa
The Sierra Leonean contestant took the inaugural title at a pan-African pageant created to celebrate women with albinism on their own terms.
Real StoriesGoogle News — AlbinismA family speaks ahead of World Albinism Awareness Day
As World Albinism Awareness Day approaches on 13 June, one family is sharing their experience to help correct misconceptions about the condition.
Real StoriesGoogle News — AlbinismA diagnosis of one in 20,000
A family in the Australian Border region shares what it means to raise a child with albinism — from the first diagnosis to daily life.
Real StoriesGoogle News — AlbinismXueli Abbing, from orphanage to Vogue's pages
Born with albinism and left at a Chinese orphanage, Xueli Abbing is now an international model and advocate working with Vogue and UNICEF.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Living Independently with Albinism: Musician Ben Shares His Journey
Ben, a drummer pursuing a professional music degree, opens up about independent living, navigating challenges, and finding humor in daily experiences with albinism.
Real StoriesReuters Health (Albinism via Google News)Beauty Pageant Celebrates and Affirms Dignity of People with Albinism
A special pageant is helping people with albinism reclaim their dignity and challenge stereotypes through celebration of beauty in diversity.