Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsUN General Assembly NewsUN renews anti-racism push, 25 years after Durban
Member States adopted a new declaration at the General Assembly, reaffirming commitments made at the 2001 Durban Conference on racism and discrimination.
Education & InclusionAllAfrica — AlbinismGhanaian teenagers with disabilities picture their own futures
A new study asked adolescents living with disabilities in Ghana to document their own lives. Their images and words challenge what adults assume about their prospects.
Human RightsOHCHR — Independent Expert on AlbinismUN updates torture documentation manual to include albinism
The OHCHR has revised its core investigation manual to formally recognise attacks on people with albinism as a form of torture. The update marks a shift in how international law frames ritual violence.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Emma on travelling with albinism and low vision
In a new episode of Albinism Life, Emma speaks candidly about navigating travel with low vision — the practical challenges, the social ones, and the confidence built along the way.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Growing up with albinism in Nigeria and the UK
Teejay was born in Lagos and later moved to the UK to study. In a new podcast episode, he speaks about belonging, identity, and what it means to grow up with albinism across two very different countries.
Africa FocusReuters Health (Albinism via Google News)Malawi orders police to shoot to protect people with albinism
Malawi's government has authorised police to use lethal force against those who attack people with albinism, amid a sharp rise in killings and abductions.
Health & Sun ProtectionGoogle News — AlbinismAbia state proposes monthly cancer screening for albinism community
Officials in Abia, Nigeria, have called for regular skin cancer screening for people with albinism, citing their heightened vulnerability to UV-related disease.
Health & Sun ProtectionGoogle News — AlbinismAlbinism Awareness Month brings skin cancer risks into focus
People with albinism face significantly higher rates of skin cancer, yet access to sunscreen and dermatological care remains limited across much of the world.
Human RightsOHCHR — Independent Expert on AlbinismUN experts warn of rising transnational repression against rights defenders
A joint statement from United Nations human rights experts raises alarm over cross-border threats targeting activists, including those working to protect people with albinism.
Health & Sun ProtectionPubMed — Albinism ResearchSnowflake the gorilla with albinism was inbred
A genetic study has identified inbreeding as the cause of albinism in Snowflake, a western lowland gorilla who lived at Barcelona Zoo for 37 years.
Health & Sun ProtectionAmerican Journal of Human GeneticsWhat genomic newborn screening found in 10,800 infants
Early trials across three countries tested genome sequencing at birth. Researchers say key questions about fairness, cost, and long-term outcomes remain open.
Human RightsOHCHR — Independent Expert on AlbinismUN albinism expert is visiting the United States
The UN's Independent Expert on Albinism is conducting an official visit to the United States and is calling for input from the community.
Human RightsUN General Assembly NewsUN affirms development as a right, not charity
A UN General Assembly discussion reframes global development as a question of equity and entitlement, with direct implications for marginalised communities worldwide.
Health & Sun ProtectionGoogle News — AlbinismAlbinism Awareness Month focuses on skin cancer detection
The Knysna-Plett Herald reports on Albinism Awareness Month, highlighting elevated skin cancer risks for people with albinism and the case for early detection.
Africa FocusReuters Health (Albinism via Google News)Tanzanian children with albinism face return from USA
Children with albinism who were brought to the United States after surviving attacks in Tanzania now face an uncertain return home.
Health & Sun ProtectionGoogle News — AlbinismAbia first lady offers cash and insurance to albinism community
The wife of Abia State's governor distributed cash and health insurance cards to people with albinism and sickle cell disease in Nigeria.
Health & Sun ProtectionPubMed — Albinism ResearchSnowflake the gorilla's albinism traced to inbreeding
A genetic study of Snowflake, the only known gorilla with albinism, found his condition resulted from inbreeding between close relatives.
Human RightsOHCHR — Independent Expert on AlbinismUN maps the rights framework protecting people with albinism
A report to the UN General Assembly sets out the international human rights standards that apply specifically to people with albinism, clarifying what states are legally obliged to do.
Myths & FactsReuters Health (Albinism via Google News)A Nigerian comic book reimagines people with albinism as heroes
Illustrator Etubi Onucheyo created Albino Boy and the Warriors of Light to counter the myths that drive ritual killings of people with albinism in Nigeria.
Education & InclusionGoogle News — AlbinismRefilwe Modiselle brings Zizi's World to South African schools
Actor and model Refilwe Modiselle is touring South African schools with her children's book Zizi's World, combining literacy sessions with albinism awareness.